BADANIA

KIF1A Associated Neurological Disorder (KAND) is a complex genetic disease where different mutations lead to a wide spectrum of symptoms and their severity. Thanks to the involvement of patients and families, working with doctors and scientists, our knowledge of KAND has grown significantly and brings us closer to developing therapies that can transform the lives of patients.

As a patient or family member, you are a key piece of the KAND puzzle - without you, it cannot be solved. Participating in research accelerates the development of therapies not only for you, but for the entire KAND community. Regardless of how long ago you received your diagnosis, where you live or what language you speak - your participation is of great importance.

There are many opportunities to get involved in research. If you have questions or need support, contact us: [email protected].