SPOŁECZNOŚĆ

Weronika came into the world as a healthy and joyful girl, receiving 10 points on the Apgar scale. However, over time her development began to differ from her peers - the first difficulties with balance, motor coordination and walking appeared. The road to diagnosis was long and full of uncertainty, until finally the family heard the name of a rare genetic disease: KIF1A Associated Neurological Disorder (KAND).

Currently, Weronika takes anti-epileptic medications Vetira and Ontozry. From the first weeks of life, she participates in intensive rehabilitation and therapy. She has benefited from many methods supporting development - including NDT Bobath, Vojta method, Medek method, Castillo Morales, vision therapy, speech therapy and neuropedagogy, sensory integration, sessions with a psychologist, as well as hippotherapy, dog therapy and swimming sessions.

For Weronika's family, the diagnosis became the beginning of seeking help, knowledge and support. It was she who inspired her mother to establish the KIF1A Poland Association in Krakow in 2023, so that no family would have to go through this difficult journey alone.

Weronika's story is a tale of courage, patience and boundless love. It is also testimony to a path full of challenges that Weronika overcomes every day together with her loved ones - step by step, with hope for the future and a better tomorrow for all children with KAND.